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Organisation |
National / Regional Address |
Local Contact |
Advisory Centre for Education (ACE)
ACE provides free independent advice and information for parents and carers in England and Wales on a range of state education and schooling issues. |
Advisory Centre for Education (ACE)
1C Aberdeen Studios
22 Highbury Grove
London N5 2DQ
General Helpline:
0808 800 5793
(Mon – Thurs 10am – 4pm)
Exclusion Helpline:
0808 800 0327
(Mon- Thurs 10am- 4pm)
Exclusion Information line to leave a message to request an information pack:
Tel: 020 7704 9822
(24 hours answerphone)
Website: www.ace-ed.org.uk
Email: enquiries@ace-ed.org.uk |
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Arthritis Care
Arthritis Care is here for all people with all forms of arthritis.
Letter: Arthritis Care
18 Stephenson Way
London
NW1 2HD
Tel: 020 7380 6500
Confidential Helpline:
0808 800 4050
Website: www.arthritiscare.org.uk
Email: info@arthritiscare.org.uk We represent people with arthritis.
We provide clear and accurate information about arthritis. Our helplines team offers practical, confidential support backed up by a wealth of useful publications, including Arthritis News, our award winning magazine |
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Asthma UK
Provides advice, information and support for people with Asthma and for their families / carers. Also provide free written materials to help people manage Asthma. There is also a free Asthma policy pack available to schools (there is a small charge for bulk orders). Holidays are available for children with asthma. |
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A-T Society (Ataxia Telangiectacisa Society)
Support group for families of children, who have Ataxia Telangiectacisa, a little known, neuro-degenerative disease. |
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ADDISS The National Attention Deficit Disorder Information and Support Service.
We provide people-friendly information and resources about Attention Deficit Hyperactivity Disorder to anyone who needs assistance - parents, sufferers, teachers or health professionals. |
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Living with ADHD
A new a improved website tailor-made for parents, teachers and teenagers with ADHD |
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Autism - The National Autistic Society (NAS)
This is a charity for people with autism (including Asperger syndrome), their families and carers. The NAS provides a wide range of services, including an autism helpline, a befriending scheme, advocacy for education service, parent support service, schools, day centres and residential settings. |
The National Autistic Society
393 City Road
London EC1V 1NG
Tel 020 7833 2299
Helpline for professionals, parents, carers and persons on the autistic spectrum
Tel: 0845 070 4004
10am to 4pm Monday to Friday
Advocacy Education Line
Tel: 0845 070 4002
Website: www.autism.org.uk |
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BIBIC - The British Institute for Brain Injured Children
BIBIC has been helping children achieve more of their true potential for over 30 years. It provides a service that offers parents/carers the opportunity to take a proactive role in their child's development. |
The British Institute for Brain Injured Children
Knowle Hall,
Bridgewater
Somerset TA7 8PJ
Tel 01278 684060
9am to 5pm Monday to Friday
Email: info@bibic.org.uk
Website: www.bibic.org.uk |
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Blind - Royal National Institute of the Blind (RNIB)
The Institute supports parents with an Information Service which provides advice and information pamphlets to help children, who are blind or partially sighted, to obtain access to the educational facilities they need. |
Royal National Institute of the Blind
105 Judd Street
London WC1H 9NE
Tel: 020 7388 1266
9am to 5pm Monday to Friday
Helpline: 0303 123 9999
Website: www.rnib.org.uk |
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Brittle Bone Society
The Society provides practical help and advice to people affected by Osteogenesis Imperfecta (O I). |
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Carers UK
Carers UK is a charity set up to help the millions of people who care for family or friends. It offers help to every carer, including young people. |
Carers UK
20 Great Dover Street
London
SE1 4LX
Tel: 020 7490 8818
Website: www.carersuk.org
Advice Line: 0808 808 7777 |
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CEREBRA
Cerebra commissions and funds research to decrease the incidence of early damage to the brain and evaluates therapeutic approaches.It also supports families of children experiencing the effects of damage.
Visit the website for up to date information on all the services available. |
Cerebra
2nd Floor Offices
The Lyric Buildings
King Street
Carmarthen
SA31 1BD
Tel: 01267 244 200
Fax: 01267 244 201
Free telephone:
0800 328 1159
Counselling Helpline:
0800 043 9385
Website: www.cerebra.org.uk
Email: info@cerebra.org.uk |
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Childhood First
(formerly Peper Harow Foundation)
Childhood First exists to provide help to seriously troubled children and adolescents nation-wide and to support their families and those responsible for their care.
Therapeutic residential centres with on site education provided and outreach service available. |
Childline
Freepost NATN1111
London E1 6BR
Freephone Helpline:
Tel: 0800 1111
Calls are free and confidential
Website: www.childline.org.uk |
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Children’s Centre Services (Lewisham)
Children Centre services are there to provide a central point of information and support for families with children aged 0-5. Groups and activities, information about child care and early years education and health provision are just of the services available for young children. |
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Children’s Centre Services Area 1
Hatcham Oak Centre
020 7740 9820
Children’s Centre Services Area 2
Ladywell Centre
020 8690 3729
Children’s Centre Services Area 3
(Torridon Library)
020 8314 6236
Children’s Centre Services Area 4
( Bellingham) 020 8314 3232 |
The Children’s Legal Centre
The Children's Legal Centre is an independent national charity concerned with law and policy affecting children and young people. They provide legal advice, information and representation for children and young people. |
London office:
The Children's Legal Centre
38 Great Portland Street
LONDON
W1W 8QY
DX: 44640 Mayfair
Freephone: 0808 802 0008 (for advice relating to English child law)
Tel: 0207 5801664
Fax: 0207 5801341
E-mail: clclondon@essex.ac.uk
Website: www.childrenslegalcentre.com |
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Communities Empowerment Network
Communities Empowerment Network (CEN) provides advice, counselling, support, representation and training for people experiencing mistreatment and discrimination in education especially exclusion from school. |
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Connexions
The Connexions Direct website has now become part of Directgov Young People. All relevant content for young people can now be found on the Directgov website. |
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Contact a Family
Provides support for families who care for children with disabilities and special needs. Has links with over 900 support groups and helps with linking families sharing the same disabilities for friendship and advice, especially for the rare medical conditions. A variety of useful fact sheets and booklets is available. |
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Council for Disabled Children
The Council promotes collaborative work between different organisations providing services and support for children and young people with disabilities and special educational needs. The Council aims to raise awareness of the needs of children with disabilities and those of their families through a range of consultancy and project work. |
Council for Disabled Children
C/o National Children’s Bureau
8 Wakley Street
London EC1V 7QE
Tel 020 7843 1900
Website
Email
cdc@ncb.org.uk |
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Cystic Fibrosis Trust
The Trust finances research, education, developing specialist centres and supporting individuals with Cystic Fibrosis and their families and carers
The Trust also provides support to professionals. |
Cystic Fibrosis Trust
11 London Road
Bromley
Kent BR1 1BY
Office number
Tel 020 8464 7211
Helpline: 0300 373 1000
Welfare Grants Helpline
Tel 0300 373 1020
Tel 0300 373 1010
9am to 5pm Monday to Friday
Email: enquiries@cftrust.org.uk
Website: www.cftrust.org.uk |
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Deaf - National Deaf Children’s Society (NDCS)
The National Deaf Children’s Society (NDCS) is a UK charity, solely dedicated to the support of all deaf children and young deaf adults. The charity also offers support to their families and professionals working with them. |
National Deaf Children’s Society
15 Dufferin Street
London EC1Y 8UR
Office Tel 0207 490 8656 (voice and text)
Fax 0207 251 5020
Free telephone Helpline:
0808 800 8880 (voice and text)
Monday to Friday (9:30 to 5pm)
If you prefer a spoken language other than English, tell us the language of your choice and telephone number in English and we will ring you back within a few minutes with an interpreter.
Email: ndcs@ndcs.org.uk
Website: www.ndcs.org.uk |
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Deaf - RNID - Royal National Institute for the Deaf
RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK. As a membership charity, they aim to achieve a radically better quality of life for deaf and hard of hearing people. |
Royal National Institute for the Deaf
19-23 Featherstone Street
London EC1Y 8SL
Freephone: 0808 808 0123
Text phone: 0808 808 9000
Fax 020 7296 8199
Email:
Website: www.actionhearingloss.org.uk
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Disabled Living Foundation
A national charity providing advice on equipment or assisted technology for independent living for both children and adults Leaflets are available. There is a showroom of the disability equipment, where an appointment can be made to visit. Helpline is open Mon – Fri, 10am – 4pm. |
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Down's Heart Group
A support group for families with a member who has Down's Syndrome with a heart condition. |
Down’s Heart Group
P.O. Box 4260
Dunstable
Beds LU6 2ZT
Main office
Tel: 0844 288 4800
Fax: 0844 288 4808
Email: info@dhg.org.uk
Website: www.dhg.org.uk |
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Down's Syndrome Association
Provides information, advice, counselling and support to parents/carers of people with Down’s Syndrome, as well as people with a professional interest. It advises on a wide range of social, educational and health needs relevant to Down's Syndrome. |
British Dyslexia Association
Unit 8 Bracknell Beeches
Old Bracknell Lane
RG13 7BW
Admin Tel: 0845 251 9003
Helpline: 0845 251 9002
Email:
Website: www.bdadyslexia.org.uk
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Dyslexia - Dyslexia Action
The Institute has 27 main centres and over 140 smaller teaching units throughout the country. It carries out assessments for children and adults who may have dyslexia, provides tuition, trains specialist teachers, develops teaching materials and conducts research. |
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Dyspraxia Foundation
The Dyspraxia Foundation has a national network of some 34 local groups. They offer support and a wide range of activities specific to the child with dyspraxia. The Dyspraxia Foundation offers support and advice to parents and carers. Among other activities, it organises conferences and talks about dyspraxia and related topics for parents, carers and professionals. |
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Eating Disorder Association
Beat Beating eating disorders
Offers help, a listening ear and understanding to anyone affected by an eating disorder. Provides information about services in your area. |
Beat
Wensum House
103 Prince of Wales Road
Norwich
Norfolk NR1 1DW
Head office: 0300 123 3355
Youth Helpline: 0845 634 7650
(Mon to Fri 4.30pm to 8:30pm Sat 1pm to 4:30pm)
Youth Email: fyp@beat.co.uk
Adult Helpline: 0845 634 1414
Mon to Fri 10:30 to 8:30pm and Sat 1pm to 4.30pm
Email: help@b-eat.co.uk
Website: www.b-eat.co.uk |
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Education Psychology Service
Works with and on behalf of individuals and groups of children and young people from 0-19 years. |
Lewisham Educational Psychology Service
Kaleidoscope
32 Rushey Green
London SE6 4JF
Tel: 020 8314 7041 |
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Epilepsy Action
Epilepsy Action is working to represent the interests and improve the quality of life for those living with epilepsy in the community. The Association offers, among other services, a national information service, a free phone helpline, fact sheets and booklets. The Association assists in the formation of local groups. |
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ERICC (Education & Resources for Improving Childhood Continence)
Provides free information and resources for improving childhood continence including bedwetting, daytime wetting, soiling and constipation. Also information relating to childhood continence with children with special educational needs. Provide a free booklet 'We can do it. Helping Children, who have Learning Disabilities, with Bowel and Bladder Management. |
ERICC (Education & Resources for Improving Childhood Continence)
34 Old School House, Britannia Road,
Kingswood,
Bristol, BS15 8DB
Helpline: 0845 370 8008
(24 hours a day)
Website: www.eric.org.uk |
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Families in Partnership
FiP is a SAGE scheme that helps to support local parents and children across a wide range of issues such as education , behaviour management and health and social development |
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Family Fund
We are the UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people. We help ease the additional pressures families face. We can help with essential items such as washing machines, fridges and clothing but can also consider grants for sensory toys, computers and much needed family breaks together. |
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Family Information Service
The Family Information Service is a free and impartial service for parents and carers of children and young people aged 0 - 19. We provide accurate information on a wide range of things including registered childcare provision, leisure activities and family support. |
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London Borough Of Lewisham First Floor
1 Laurence House
Catford Road
London
SE6 4RU
Tel: 0800 085 0606
Email: fis@lewisham.gov.uk |
Family Lives
Family Lives is a national charity formerly known as Parentline Plus. It offers a range of services for families of children of any age, providing help and support in all aspects of family life. |
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Family Rights Group
A national organisation that works with families, practitioners, researchers and policy makers to improve the law, policy and practice for families who are involved with social services.
The telephone advice service helps families, who have children in care or who are in contact with social services. |
Family Rights Group
Second Floor
The Print House
18 Ashwin Street
London E8 3DL
Tel 020 7923 2628
Fax 020 7923 2683
Advice Service:
0808 801 0366
(Mon to Fri 9:30 to 3:30pm)
Email: office@frg.org.uk
advice@frg.org.uk
Website: www.frg.org.uk |
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Family Services UK
The purpose of FSUK is to help stop the pain caused by mental health disorders. The hope is to provide mental health services to local organisations as well as individuals and families who are now beginning to demand better treatment and less waiting times. |
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FragileX Society
Provides support for families with Fragile X. Also provides leaflets, information, newsletter ad hold national family conferences. |
FragileX Society
Rood End House,
6 Stortford Road,
Great Dunmow,
Essex, CM6 1DA
Tel: 01371 875100
Email: info@fragilex.org.uk
Website: www.fragilex.org.uk |
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I Can
4 Dyer's Buildings
Holborn
London EC1N 2QP
Tel: 0845 225 4071
Website: www.talkingpoint.org.uk
Email: info@talkingpoint.org.uk |
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Inclusion - Centre for Studies on Inclusive Education (CSIE)
Publishes a large number of free and inexpensive leaflets and reports on inclusive education to help parents and professionals. Organises conferences and supports parents’ groups, students, schools and Local Authorities. |
Centre for Studies on Inclusive Education
The Park
Daventry Road
Knowle
Bristol BS4 1DQ
Tel: 0117 353 3150
Fax: 0117 353 3151
Email: admin@csie.org.uk
Website: www.csie.org.uk |
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Inclusion - Independent Panel of Special Education Advice (IPSEA)
Provides parents with legal information on special educational needs processes. Can also represent parents at tribunal. |
Independent Panel of Special Education Advice
Advice Line: 0800 018 4016
Tribunal Helpline:
0845 602 9579
Website: www.ipsea.org.uk |
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Inclusion -The Alliance for Inclusive Education
This is a national campaigning organisation led by disabled people. The Alliance works to change laws, practices and procedures which discriminate against disabled young people. The Alliance works together with allies to build a social climate in which everyone has a valued place. |
The Alliance for Inclusive Education
336 Brixton Road
London SW9 7AA
Tel: 0207 737 6030
Website: www.allfie.org.uk |
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ITP (Immune Thrombocytopenic Purpura) Support Association
Support for adult and children affected by ITP and for their families. Also provides support for adults with ITP. |
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KIDS
Kids London SEN Mediation Service aims to settle disputes that arise between parents and local authorities/schools about the special educational needs of children, and how best to meet those needs |
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Kidscape
Kidscape is a charity involved in prevention of bulling and child abuse. The helpline is available for parents and teachers.
Courses are available for other professionals. Workshops are available for children who have been bullied. |
Kidscape
2 Grosvenor Gardens
London SW1W 0DH
Tel: 020 7730 3300
Helpline: 08451 205 204
(Mon to Thurs 10am to 4pm)
Website: www.kidscape.org.uk |
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LAMP in schools
Lewisham Action on Mediation Project, is a voluntary, independent and accredited mediation service. LAMP provides a wide range of mediation, facilitation and training services to all who live, work or attend school within the borough of Lewisham |
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Old Fire Station
340 Lewisham High Street
London SE13 6LE
Tel: 020 8690 0760
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Max Appeal
Max Appeal is a national/ international charity run by parents for parents/carers, their families and anyone affected by Di George syndrome, VCFS and 22q11.2 deletion. Holds events designed to make life enjoyable and provides information. Also provides a website chat room. |
Max Appeal
15 Meriden Avenue,
Wollaston,
Stourbridge, DY8 4QN
Tel: 0800 389 1049
Website: www.maxappeal.org.uk |
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MENCAP National Centre
Provides information, advice and support to children, young people and adults with learning disabilities, and their families.
The Royal Society MENCAP has a team of people working in Bedfordshire, to promote and support people with learning disabilities, their parents and carers. There are 5 voluntary local societies and 13 Gateway clubs which offer varied programmes of leisure and fun. |
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Lewisham Mencap
72 Lee High Road
SE13 5PT
Tel: 020 8852 4100 |
Mind
Mind works throughout England and Wales. It provides information on all aspects of mental health to people who experience mental distress and to their families, to professionals and to the public.
If offers mental health services through a network of local Mind associations, including; sheltered homes, drop-in centres, counselling, advocacy and employment schemes. |
Mind
Granta House
15-19 Broadway
Stratford
London E15 4BQ
Office Tel 020 8519 2122
Mind InfoLine: 0300 123 3393
(Mon to Fri 9am to 6pm)
Website: www.mind.org.uk
Email: info@mind.org.uk |
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Muscular Dystrophy Campaign
Local support groups support and offer information, advice and support to people affected by muscular dystrophy, their families and friends. |
Muscular Dystrophy Campaign
61 Southwark Street
London SE1 0HL
Tel: 020 7803 4800
Information line:
0800 652 6352
(Mon to Fri 9am to 5pm)
Email: info@muscular-dystrophy.org
Website: www.muscular-dystrophy.org |
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National Centre for Independent Living (NCIL)
NCIL promotes personal assistance to enable independent living. It aims to promotes independent living by: contributing to national policy development, promoting and support the use of direct payments, ensuring that the options of independent living and direct payments are available to all who want them, on a basis of equality. |
National Centre for Independent Living( NCIL)
Unit 3.40 Canterbury Court
1-3 Brixton Road
London SW9 6DE
Tel: 020 7587 1663
Advice line: 0845 026 4748
Website: www.ncil.org.uk |
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National Children's Bureau
NCB is the leading national charity which supports children, young people, families and those who work with them. We aim to improve the well-being of children and young people across every aspect of their lives. |
National Children’s Bureau
8 Wakley Street
London EC1V 7QE
Tel: 020 7843 6000
Fax: 020 7278 9512
Website: www.ncb.org.uk
Email: enquiries@ncb.org.uk |
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National Society for the Prevention of Cruelty to Children (NSPCC)
The Society offers an initial assessment service to families and an opportunity to talk through issues with qualified workers. Support groups for parents and children experiencing various difficulties are also available. |
National Society for the Prevention of Cruelty to Children
Weston House
42 Curtain Road
London EC2A 3NH
National Helpline:
0808 800 5000
Website: www.nspcc.org.uk |
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National Youth Advocacy Service
NYAS is a national charity providing socio-legal advice, information and advocacy services to children and young people up to the age of 25. NYAS provides a service to a child or young person whose voice is not being heard, through a national network of multi-disciplinary advocates and solicitors. |
Egerton House
Tower Road
Birkenhead
Wirral CH41 1FN
Tel: 0151 649 8700
Helpline: 0800 61 61 01
(Mon to Fri 8am to 8pm and Sat 10am to 4pm)
Email: help@nyas.net
Website: www.nyas.net |
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Network 81
Provides free advice and guidance to parents, including on law relating to special educational needs. Befrienders can support parents at meetings and through the Statutory Assessment process. It helps parents by putting them in touch with others in their local area.
Can also liaise with schools and Local Authorities (LA’s) on behalf of parents.
Can provide support for Tribunal appeals, including advocacy. |
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Newlife (foundation for disabled children)
To help disabled and terminally ill children in the UK. |
Newlife Centre
Hemlock Way
Cannock
Staffordshire
WS11 7GF
Newlife Foundation
Tel: 01543 462 777
Newlife Ltd
Tel: 01543 468 888
Website: www.newlifecharity.co.uk |
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NPPN National Parent Partnership Network
Offers information advice and support to parents and carers of children and young people with special educational needs |
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Occupational Therapy Service
The service aims to provide a child centred, ‘needs’ led provision which is based upon children’ performance of everyday activities of self care, school, work and leisure/play. |
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Kaleidoscope
Lewisham Centre for Children and Young People
32 Rushey Green
Catford SE6 4JF
Tel: 020 7138 1337 |
Parent Support Group
Working with the parents and carers of young people.
One – one help and support for parents |
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Parents for Inclusion (PI)
Set up by parents in 1984, PI is still run by parents to help each other and spread the word on inclusion. The Helpline and the Information Service are staffed by parents who have ‘been there and know the score'. Local group contacts can be obtained by phoning the Helpline. |
Parents for Inclusion
336 Brixton Road
London SW9 7AA
Office Tel: 020 7738 3888
Helpline: 0800 652 3145
Website: www.parentsforinclusion.org |
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Kaleidoscope
Lewisham Centre for Children and Young People. It supports families and their children, and brings together specialist community services for health, disability, mental health, education and social care - all working closely with the Voluntary Sector. |
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Lewisham Portage Service
A home visiting service for pre-school children with special needs |
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Pre-School Learning Alliance
The Pre-school Learning Alliance is a leading early years membership organisation and one of the largest providers of quality childcare in England.
We offer support to over 15,000 settings and impact positively on the care and education of over 800,000 young children and their families every year. |
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